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Meet The World’s ‘Heart Girl’, She Suffers From Pentalogy of Cantrell- Born With Her Heart Outside Her Body

Virsaviya ‘Bathsheba’ Borun-Goncharova was born with a very rare condition that left her heart outside of her body.

When she was pregnant, her mother Dari was told her child would never survive but, more than half a decade on, the youngster continues to fight on.

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Virsaviya, who hails from Russia and is now living in South Florida with her mum, suffers from Pentalogy of Cantrell, a rare congenital condition which occurs in around 5.5 per one million live births.

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The condition causes babies to be born with vital organs on the outside of their bodies. The intensity of the disorder differs from each individual to the other. In Virsaviya’s case, her heart and intestines are located outside of her chest and abdomen.

The little girl’s heart can actually be seen beating outside of her abdomen, covered by just a thin layer of skin. Given that the heart isn’t protected by the ribcage, the condition can be fatal as a slight bump or fall could cause significant damage or worse.

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As luck would have it, earlier this year, Virsaviya’s mother, Dari Borun found a doctor at Boston’s Children’s Hospital willing to operate on her daughter. But, although she desperately needs surgery to correct the issue, Virsaviya cannot be operated on for at least another two years due to her high blood pressure..

Speaking to NBC News, the brave little girl said, “I know why I have heart outside, because Jesus want to show that he can make special things like me.

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Written by How Africa

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