Featured in a new episode of Barcroft TV‘s “Born Different”, they share their inspirational life stories.
DESPITE there being only 155 known cases worldwide, a brother and sister BOTH live with progeria – an incredibly rare disease that makes them age too fast. Siblings Michiel and Amber Vandeweert have progeria, a genetic condition characterised by the signs of accelerated, and premature, ageing. Experiencing problems with their bones, teeth and hair growth, patients with progeria have a very short life expectancy with most not seeing out their teen years. But that hasn’t stopped Michiel, 20, and Amber, 12, living their best life together – the inspirational siblings from Belgium have truly defied all odds up to this point and show no signs of slowing down. Daredevil, Michiel, stands at just 4 foot 1 inch and loves to race around a track at Go Karting and snowboard with his friends. Amber, 3 foot 7 inches, has a great a passion for dancing and describes herself as playful. When Michiel was born, doctors said it was verging on impossible for the Vandeweert family to give birth to a second child who also had the disease, and so when Amber was diagnosed eight years after her brother, everyone fell into a state of shock. No one expected the siblings to be in this position, but they remain thankful to this day that they have each other as their greatest support.